YouTube® in Spanish as an information source for patients with autoimmune hepatitis

C. E. Lombo-Moreno; O. M. Muñoz-Velandia; D. G. Fernández-Ávila; J. E. Barahona-Correa; H. C. Aranguren; F. A. Avila

doi:10.1016/j.rgmx.2023.03.006

YouTube® in Spanish as an information source for patients with autoimmune hepatitis

Título traducido de la contribución: YouTube® en español como fuente de información para pacientes con hepatitis autoinmune

C. E. Lombo-Moreno, O. M. Muñoz-Velandia, D. G. Fernández-Ávila, J. E. Barahona-Correa, H. C. Aranguren, F. A. Avila

Producción: Contribución a una revista › Artículo › revisión exhaustiva

1 Cita (Scopus)

Resumen

Introducción
Gran parte de los pacientes con hepatitis autoinmune (HA) buscan información de su enfermedad en internet. La confiabilidad, la exhaustividad y la calidad de esta información en español no han sido estudiadas.

Objetivo
Describir las características de la información sobre HA en YouTube®.

Métodos
Estudio observacional analítico que incluyó videos en español sobre HA disponibles en YouTube®. Se describen características generales, interacción y fuentes generadoras. Se utilizaron herramientas estandarizadas para la evaluación de la confiabilidad (DISCERN), la exhaustividad y la calidad global ( Global Quality Score [GQS]).

Resultados
Cien videos fueron incluidos. El 93% representaban información proveniente de profesionales en salud (grupo 1) y el 7% opiniones de pacientes (grupo 2). Hubo diferencias en la mediana del puntaje de confiabilidad (DISCERN: 4 vs 2, p ≤ 0.05), exhaustividad (4 vs 2, p ≤ 0.05) entre grupos, aunque igual calidad global (GQS: 3 vs 2, p = 0.2). La confiabilidad (DISCERN: 4; RIC: 3-4) y la exhaustividad (4.5; RIC: 3-5) fueron mayores en videos realizados por organizaciones profesionales comparados con los usuarios independientes, con las páginas de información en salud y con agencias con ánimo de lucro (DISCERN: 3; RIC: 2.5-3.5; p < 0.001). La confiabilidad (DISCERN: 2; RIC: 1.5-3), la exhaustividad (2; RIC: 1.5-2.5) y la calidad (GQS: 2.5; RIC: 1.5-3.5) fueron menores para videos por agencias con ánimo de lucro.

Conclusión
La mayoría de los videos sobre HA en YouTube® en español tienen buena confiabilidad, exhaustividad y calidad. Se obtuvieron mayores puntajes en videos realizados por organizaciones académicas. Se sugiere aumentar la colaboración con videos que representen la opinión de pacientes.

Título traducido de la contribución	YouTube® en español como fuente de información para pacientes con hepatitis autoinmune
Idioma original	Inglés
Páginas (desde-hasta)	205-212
Número de páginas	8
Publicación	Revista de Gastroenterologia de Mexico
Volumen	89
N.º	2
DOI	https://doi.org/10.1016/j.rgmx.2023.03.006 https://doi.org/10.1016/j.rgmx.2023.03.006
Estado	Publicada - 01 abr. 2024

Palabras clave

Hepatitis autoinmuneMedios de comunicación socialesEducación del paciente como asunto

ODS de las Naciones Unidas

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title = "YouTube{\textregistered} in Spanish as an information source for patients with autoimmune hepatitis",

abstract = "Introduction: A large number of patients with autoimmune hepatitis (AH) seek information about their disease on the internet. The reliability, comprehensiveness, and quality of said information in Spanish has not been studied. Aim: Our aim was to describe the characteristics of the information about AH on YouTube{\textregistered}. Methods: An analytic observational study evaluated videos in Spanish about AH available on YouTube{\textregistered}, describing their general characteristics, viewer engagement, and information sources. Standardized tools were utilized to analyze reliability (DISCERN), comprehensiveness, and overall quality (Global Quality Score [GQS]). Results: One hundred videos were included, 93% of which provided information from healthcare professionals (group 1), and 7% of which reflected patient opinions (group 2). There were differences in the median reliability (DISCERN: 4 vs 2, P ≤ .05) and comprehensiveness (4 vs 2, P ≤ .05) scores between groups, but equal overall quality (GQS 3 vs 2, P = .2). Reliability (DISCERN: 4; IQR: 3-4) and comprehensiveness (4.5; IQR: 3-5) were higher in videos by professional organizations, compared with those by independent users, healthcare information websites, and for-profit organizations (DISCERN: 3; IQR: 2.5-3.5; P < .001). Reliability (DISCERN: 2; IQR: 1.5-3), comprehensiveness (2; IQR; 1.5-2.5), and quality (GQS: 2.5; IQR: 1.5-3.5) were lower for videos made by for-profit organizations. Conclusion: The majority of videos about AH in Spanish on YouTube{\textregistered} have good reliability, comprehensiveness, and quality. Videos created by academic organizations had higher scores, thus their collaboration, with respect to patient opinion videos, is suggested.",

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author = "Lombo-Moreno, {C. E.} and Mu{\~n}oz-Velandia, {O. M.} and Fern{\'a}ndez-{\'A}vila, {D. G.} and Barahona-Correa, {J. E.} and Aranguren, {H. C.} and Avila, {F. A.}",

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doi = "10.1016/j.rgmx.2023.03.006",

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AU - Lombo-Moreno, C. E.

AU - Muñoz-Velandia, O. M.

AU - Fernández-Ávila, D. G.

AU - Barahona-Correa, J. E.

AU - Aranguren, H. C.

AU - Avila, F. A.

PY - 2024/4/1

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N2 - Introduction: A large number of patients with autoimmune hepatitis (AH) seek information about their disease on the internet. The reliability, comprehensiveness, and quality of said information in Spanish has not been studied. Aim: Our aim was to describe the characteristics of the information about AH on YouTube®. Methods: An analytic observational study evaluated videos in Spanish about AH available on YouTube®, describing their general characteristics, viewer engagement, and information sources. Standardized tools were utilized to analyze reliability (DISCERN), comprehensiveness, and overall quality (Global Quality Score [GQS]). Results: One hundred videos were included, 93% of which provided information from healthcare professionals (group 1), and 7% of which reflected patient opinions (group 2). There were differences in the median reliability (DISCERN: 4 vs 2, P ≤ .05) and comprehensiveness (4 vs 2, P ≤ .05) scores between groups, but equal overall quality (GQS 3 vs 2, P = .2). Reliability (DISCERN: 4; IQR: 3-4) and comprehensiveness (4.5; IQR: 3-5) were higher in videos by professional organizations, compared with those by independent users, healthcare information websites, and for-profit organizations (DISCERN: 3; IQR: 2.5-3.5; P < .001). Reliability (DISCERN: 2; IQR: 1.5-3), comprehensiveness (2; IQR; 1.5-2.5), and quality (GQS: 2.5; IQR: 1.5-3.5) were lower for videos made by for-profit organizations. Conclusion: The majority of videos about AH in Spanish on YouTube® have good reliability, comprehensiveness, and quality. Videos created by academic organizations had higher scores, thus their collaboration, with respect to patient opinion videos, is suggested.

AB - Introduction: A large number of patients with autoimmune hepatitis (AH) seek information about their disease on the internet. The reliability, comprehensiveness, and quality of said information in Spanish has not been studied. Aim: Our aim was to describe the characteristics of the information about AH on YouTube®. Methods: An analytic observational study evaluated videos in Spanish about AH available on YouTube®, describing their general characteristics, viewer engagement, and information sources. Standardized tools were utilized to analyze reliability (DISCERN), comprehensiveness, and overall quality (Global Quality Score [GQS]). Results: One hundred videos were included, 93% of which provided information from healthcare professionals (group 1), and 7% of which reflected patient opinions (group 2). There were differences in the median reliability (DISCERN: 4 vs 2, P ≤ .05) and comprehensiveness (4 vs 2, P ≤ .05) scores between groups, but equal overall quality (GQS 3 vs 2, P = .2). Reliability (DISCERN: 4; IQR: 3-4) and comprehensiveness (4.5; IQR: 3-5) were higher in videos by professional organizations, compared with those by independent users, healthcare information websites, and for-profit organizations (DISCERN: 3; IQR: 2.5-3.5; P < .001). Reliability (DISCERN: 2; IQR: 1.5-3), comprehensiveness (2; IQR; 1.5-2.5), and quality (GQS: 2.5; IQR: 1.5-3.5) were lower for videos made by for-profit organizations. Conclusion: The majority of videos about AH in Spanish on YouTube® have good reliability, comprehensiveness, and quality. Videos created by academic organizations had higher scores, thus their collaboration, with respect to patient opinion videos, is suggested.

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KW - Social media

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YouTube® in Spanish as an information source for patients with autoimmune hepatitis

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ODS de las Naciones Unidas

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