YouTube® in Spanish as a source of information for patients with inflammatory bowel disease

C. E. Lombo-Moreno; O. M. Muñoz-Velandia; D. G. Fernández-Ávila; J. E. Barahona-Correa; V. López-Ramírez; A. Rodriguez-Varon

doi:10.1016/j.rgmx.2022.09.004

YouTube® in Spanish as a source of information for patients with inflammatory bowel disease

Título traducido de la contribución: YouTube® en español como fuente de información para pacientes con enfermedad inflamatoria intestinal

C. E. Lombo-Moreno, O. M. Muñoz-Velandia, D. G. Fernández-Ávila, J. E. Barahona-Correa, V. López-Ramírez, A. Rodriguez-Varon

Producción: Contribución a una revista › Artículo › revisión exhaustiva

2 Citas (Scopus)

Resumen

Introducción y objetivo
La mayoría de pacientes con enfermedad inflamatoria intestinal (EII) buscan información de su enfermedad en internet. La confiabilidad, la exhaustividad y la calidad de esta información en español aún no han sido estudiadas.

Material y métodos
Estudio observacional analítico que incluyó videos en español sobre EII disponibles en YouTube®. Se describen las características generales, la interacción y las fuentes generadoras. Se utilizaron herramientas estandarizadas para la evaluación de la confiabilidad (DISCERN), la exhaustividad y la calidad global ( Global Quality Score [GQS]).

Resultados
Cien videos fueron incluidos. El 88% representaban información generada por profesionales en salud (grupo 1) y el 12% opiniones de pacientes (grupo 2). No hubo diferencias en la mediana del puntaje de confiabilidad (DISCERN: 3 vs 3, p = 0.554), ni exhaustividad (3 vs 2.5, p = 0.768) entre ambos grupos, aunque sí se encontró mayor calidad global en los videos del grupo 2 (GQS: 3 vs 4, p = 0.007). La confiabilidad fue mayor para los videos realizados por organizaciones profesionales (DISCERN: 4; RIC: 3-4) en comparación con las páginas de información en salud y agencias con ánimo de lucro (DISCERN: 3; RIC: 2.5-3.5) (p < 0.001). Para la evaluación global de calidad, la calificación fue superior para estas últimas fuentes (GQS 3 vs 4, p < 0.001). Los puntajes de exhaustividad fueron similares.

Conclusión
La mayoría de videos sobre EII en YouTube® en español tienen una confiabilidad, una exhaustividad y una calidad buenas. Aunque la confiabilidad fue mayor para organizaciones profesionales, la calidad es superior en páginas de información en salud y agencias con ánimo de lucro.

Título traducido de la contribución	YouTube® en español como fuente de información para pacientes con enfermedad inflamatoria intestinal
Idioma original	Inglés
Páginas (desde-hasta)	176-185
Número de páginas	10
Publicación	Revista de Gastroenterologia de Mexico
Volumen	89
N.º	2
DOI	https://doi.org/10.1016/j.rgmx.2022.09.004 https://doi.org/10.1016/j.rgmx.2022.09.004
Estado	Publicada - 01 abr. 2024

Palabras clave

Colitis ulcerosaEnfermedad de CrohnMedios de comunicación socialesEducación del paciente como asunto

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Lombo-Moreno, C. E., Muñoz-Velandia, O. M., Fernández-Ávila, D. G., Barahona-Correa, J. E., López-Ramírez, V., & Rodriguez-Varon, A. (2024). YouTube® in Spanish as a source of information for patients with inflammatory bowel disease. Revista de Gastroenterologia de Mexico, 89(2), 176-185. https://doi.org/10.1016/j.rgmx.2022.09.004, https://doi.org/10.1016/j.rgmx.2022.09.004

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title = "YouTube{\textregistered} in Spanish as a source of information for patients with inflammatory bowel disease",

abstract = "Introduction and aim: The majority of patients with inflammatory bowel disease (IBD) seek information about their disease on the internet. The reliability, comprehensiveness, and quality of said information in Spanish has not previously been studied. Materials and methods: An analytic observational study was conducted that included YouTube{\textregistered} videos on IBD available in Spanish, describing general characteristics, engagement, and sources. Standard tools for evaluating reliability (DISCERN), comprehensiveness, and overall quality (Global Quality Score [GQS]) were employed. Results: One hundred videos were included. Eighty-eight videos consisted of information produced by healthcare professionals (group 1) and 12 included patient opinions (group 2). There were no differences in the median scores for reliability (DISCERN: 3 vs 3, P = .554) or comprehensiveness (3 vs 2.5, P = .768) between the two groups, but there was greater overall quality in the group 2 videos (GQS 3 vs 4, P = .007). Reliability was higher for the videos produced by professional organizations (DISCERN: 4; IQR: 3-4), when compared with healthcare information websites and for-profit agencies (DISCERN: 3; IQR: 2.5-3.5) (P < .001), but the videos with healthcare information website and for-profit sources had a higher quality score (GQS: 3 vs 4, P < .001). Comprehensiveness scores were similar. Conclusion: The majority of YouTube{\textregistered} videos in Spanish on IBD have good reliability, comprehensiveness, and quality. Reliability was greater for the videos produced by professional organizations, whereas quality was higher for those created from healthcare information websites and for-profit agencies.",

keywords = "Colitis ulcerosaEnfermedad de CrohnMedios de comunicaci{\'o}n socialesEducaci{\'o}n del paciente como asunto, Crohn's disease, Patient education as a topic, Social media networking, Ulcerative colitis",

author = "Lombo-Moreno, {C. E.} and Mu{\~n}oz-Velandia, {O. M.} and Fern{\'a}ndez-{\'A}vila, {D. G.} and Barahona-Correa, {J. E.} and V. L{\'o}pez-Ram{\'i}rez and A. Rodriguez-Varon",

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year = "2024",

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doi = "10.1016/j.rgmx.2022.09.004",

language = "English",

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Lombo-Moreno, CE, Muñoz-Velandia, OM , Fernández-Ávila, DG, Barahona-Correa, JE, López-Ramírez, V & Rodriguez-Varon, A 2024, 'YouTube® in Spanish as a source of information for patients with inflammatory bowel disease', Revista de Gastroenterologia de Mexico, vol. 89, n.º 2, pp. 176-185. https://doi.org/10.1016/j.rgmx.2022.09.004, https://doi.org/10.1016/j.rgmx.2022.09.004

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AU - Lombo-Moreno, C. E.

AU - Muñoz-Velandia, O. M.

AU - Fernández-Ávila, D. G.

AU - Barahona-Correa, J. E.

AU - López-Ramírez, V.

AU - Rodriguez-Varon, A.

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Y1 - 2024/4/1

N2 - Introduction and aim: The majority of patients with inflammatory bowel disease (IBD) seek information about their disease on the internet. The reliability, comprehensiveness, and quality of said information in Spanish has not previously been studied. Materials and methods: An analytic observational study was conducted that included YouTube® videos on IBD available in Spanish, describing general characteristics, engagement, and sources. Standard tools for evaluating reliability (DISCERN), comprehensiveness, and overall quality (Global Quality Score [GQS]) were employed. Results: One hundred videos were included. Eighty-eight videos consisted of information produced by healthcare professionals (group 1) and 12 included patient opinions (group 2). There were no differences in the median scores for reliability (DISCERN: 3 vs 3, P = .554) or comprehensiveness (3 vs 2.5, P = .768) between the two groups, but there was greater overall quality in the group 2 videos (GQS 3 vs 4, P = .007). Reliability was higher for the videos produced by professional organizations (DISCERN: 4; IQR: 3-4), when compared with healthcare information websites and for-profit agencies (DISCERN: 3; IQR: 2.5-3.5) (P < .001), but the videos with healthcare information website and for-profit sources had a higher quality score (GQS: 3 vs 4, P < .001). Comprehensiveness scores were similar. Conclusion: The majority of YouTube® videos in Spanish on IBD have good reliability, comprehensiveness, and quality. Reliability was greater for the videos produced by professional organizations, whereas quality was higher for those created from healthcare information websites and for-profit agencies.

AB - Introduction and aim: The majority of patients with inflammatory bowel disease (IBD) seek information about their disease on the internet. The reliability, comprehensiveness, and quality of said information in Spanish has not previously been studied. Materials and methods: An analytic observational study was conducted that included YouTube® videos on IBD available in Spanish, describing general characteristics, engagement, and sources. Standard tools for evaluating reliability (DISCERN), comprehensiveness, and overall quality (Global Quality Score [GQS]) were employed. Results: One hundred videos were included. Eighty-eight videos consisted of information produced by healthcare professionals (group 1) and 12 included patient opinions (group 2). There were no differences in the median scores for reliability (DISCERN: 3 vs 3, P = .554) or comprehensiveness (3 vs 2.5, P = .768) between the two groups, but there was greater overall quality in the group 2 videos (GQS 3 vs 4, P = .007). Reliability was higher for the videos produced by professional organizations (DISCERN: 4; IQR: 3-4), when compared with healthcare information websites and for-profit agencies (DISCERN: 3; IQR: 2.5-3.5) (P < .001), but the videos with healthcare information website and for-profit sources had a higher quality score (GQS: 3 vs 4, P < .001). Comprehensiveness scores were similar. Conclusion: The majority of YouTube® videos in Spanish on IBD have good reliability, comprehensiveness, and quality. Reliability was greater for the videos produced by professional organizations, whereas quality was higher for those created from healthcare information websites and for-profit agencies.

KW - Colitis ulcerosaEnfermedad de CrohnMedios de comunicación socialesEducación del paciente como asunto

KW - Crohn's disease

KW - Patient education as a topic

KW - Social media networking

KW - Ulcerative colitis

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YouTube® in Spanish as a source of information for patients with inflammatory bowel disease

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