TY - JOUR
T1 - Birth defects surveillance
T2 - experiences in Argentina and Colombia
AU - Groisman, Boris
AU - Liascovich, Rosa
AU - Bidondo, María Paz
AU - Barbero, Pablo
AU - Duarte, Santiago
AU - Tellechea, Ana Laura
AU - Holguín, Jorge
AU - Rodríguez, Catherine
AU - Hurtado-Villa, Paula
AU - Caicedo, Natalia
AU - Botta, Gabriela
AU - Zarante, Ignacio
N1 - Publisher Copyright:
© 2019, Springer-Verlag GmbH Germany, part of Springer Nature.
PY - 2019/7/4
Y1 - 2019/7/4
N2 - Birth defects (BDs) are structural or functional anomalies, sporadic or hereditary, of prenatal origin. Public health surveillance is defined as the ongoing systematic collection, analysis, and interpretation of outcome-specific data for use in the planning, implementation, and evaluation of public health practice. BD surveillance systems may have different characteristics according to design, coverage, type of surveillance, case ascertainment, case definition, BD description, maximum age of diagnosis, pregnancy outcomes, coding systems, and the location of the coding process (central or local). The aim of this article is to describe and compare methodology, applications, and results of birth defect surveillance systems in two South-American countries: Colombia and Argentina. In both countries, the surveillance systems developed activities in relation to the Zika virus emergency. For most BDs, a statistically significant higher prevalence is observed in Argentina-RENAC than in Colombian registries. This may be due to methodological reasons or real differences in prevalence. The strengths, weaknesses, and the future perspectives of the Argentine and Colombian systems are presented. When developing a surveillance system, the objectives, the available resources, and previous experiences in similar contexts must be taken into account. In that sense, the experience of Argentina and Colombia can be useful for others when developing a birth defect surveillance system.
AB - Birth defects (BDs) are structural or functional anomalies, sporadic or hereditary, of prenatal origin. Public health surveillance is defined as the ongoing systematic collection, analysis, and interpretation of outcome-specific data for use in the planning, implementation, and evaluation of public health practice. BD surveillance systems may have different characteristics according to design, coverage, type of surveillance, case ascertainment, case definition, BD description, maximum age of diagnosis, pregnancy outcomes, coding systems, and the location of the coding process (central or local). The aim of this article is to describe and compare methodology, applications, and results of birth defect surveillance systems in two South-American countries: Colombia and Argentina. In both countries, the surveillance systems developed activities in relation to the Zika virus emergency. For most BDs, a statistically significant higher prevalence is observed in Argentina-RENAC than in Colombian registries. This may be due to methodological reasons or real differences in prevalence. The strengths, weaknesses, and the future perspectives of the Argentine and Colombian systems are presented. When developing a surveillance system, the objectives, the available resources, and previous experiences in similar contexts must be taken into account. In that sense, the experience of Argentina and Colombia can be useful for others when developing a birth defect surveillance system.
KW - Argentina
KW - Birth defects
KW - Colombia
KW - Registries
KW - Surveillance
UR - http://www.scopus.com/inward/record.url?scp=85059590884&partnerID=8YFLogxK
U2 - 10.1007/s12687-018-00403-6
DO - 10.1007/s12687-018-00403-6
M3 - Article
AN - SCOPUS:85059590884
SN - 1868-310X
VL - 10
SP - 385
EP - 393
JO - Journal of Community Genetics
JF - Journal of Community Genetics
IS - 3
ER -