Family needs after brain injury: A cross cultural study

Anne Norup, Paul B. Perrin, Gustavo Cuberos-Urbano, Audny Anke, Nada Andelic, Sarah T. Doyle, Maria Cristina Quijano, Alfonso Caracuel, Dulce Maria Diaz Sosa, Irma Guadalupe Espinosa Jove, Juan Carlos Arango-Lasprilla

Research output: Contribution to journalArticlepeer-review

33 Scopus citations

Abstract

OBJECTIVE: The objective of this study was to explore differences by country in the importance of family needs after traumatic brain injury (TBI), as well as differences in met/unmet needs. METHOD: Two hundred and seventy-one family members of an individual with TBI in Mexico, Colombia, Spain, Denmark, and Norway completed the Family Needs Questionnaire. RESULTS: Eight of the ten needs rated as most important globally were from the Health Information subscale. Importance ratings on the Health Information, Professional Support, and Involvement With Care subscales were similar across countries, but Mexican family members rated Instrumental Support needs as less important than Colombian, Spanish, and Danish family members, and also rated their Community Support needs as less important than Danish and Spanish family members. Mexican family member's rated emotional support needs as less important than Colombian, Spanish, and Danish family members. Globally, the needs rated as most often met were from the Health Information subscale, and the most unmet needs were from the Emotional Support subscale. CONCLUSION: Despite some similarities across countries several differences were identified, and these can help professionals to provide more culturally appropriate rehabilitation services for family members in order to improve informal care for TBI.

Original languageEnglish
Pages (from-to)203-214
Number of pages12
JournalNeuroRehabilitation
Volume36
Issue number2
DOIs
StatePublished - 17 Jun 2015

Keywords

  • Traumatic brain injury
  • caregivers
  • cultural differences
  • family needs
  • global regions

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